Research

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Interested in donating your anonymized records to research? Learn more!

What is the purpose of PicnicHealth studies?
Our goal is to power the next wave of breakthroughs in treating challenging diseases. Medical records document what living with the disease is really like and how treatment options work in the real…
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Can medical records really help with research?
Medical records tell a story of what’s actually happening when doctors see patients and can be really helpful for understanding how care is delivered in the real world.…
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Who can join a study?
It depends on the disease. Generally, you can join a study if you live in the U.S., have US medical records, and have been diagnosed with a disease that PicnicHealth is sponsoring.…
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How does study eligibility work?
PicnicHealth research studies are designed around individuals with certain conditions or other shared characteristics. Because of this, it is important that we confirm that you actually have the…
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How does study compensation work?
Some PicnicHealth studies are compensated, meaning you can receive money by taking part. If a study is compensated, it will be indicated on the web page for that study.…
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After I have volunteered to contribute my info to research, can I stop participating in a study?
Yes. Your participation in any study is completely voluntary and you can withdraw at any time. If you choose to stop participating, your medical records will remain available for you through your…
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Does PicnicHealth run clinical trials?
Contributing your records for research through PicnicHealth is not a clinical trial, though sometimes they may be used in conjunction with a clinical trial.…
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If I participate in a study, will I see its results?
Yes! We believe it’s important for you to see the results of research produced using your records and we make every effort to share published results back with you.
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Who is sponsoring the study? Are there any third parties involved?
It depends on the disease. Some studies are sponsored directly by PicnicHealth, and some are sponsored by separate companies or organizations that do scientific research to develop new treatments…
- updated 2 yrs ago
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What happens to my survey data if I cancel my account?
Once you withdraw, your de-identified survey data will no longer be shared with new researchers. Please note that any de-identified survey data that has already been analyzed and shared with…
- 3 mths ago
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What will these surveys ask?
Surveys ask questions about your health conditions and how they impact your day-to-day life. You may be asked about your symptoms, physical and mental well-being, medical history, social factors,…
- 3 mths ago
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Why should I complete these surveys?
Surveys capture your lived experience with a rare condition and amplify patient voices. The patient-centered data from surveys can help advance research by giving researchers insight into the real…
- 3 mths ago
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How are my responses being shared?
PicnicHealth's research team will have access to your survey data and may also share de-identified data with other researchers. It's important to note that any shared information will not include…
- 3 mths ago
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How does survey compensation work?
Once you’ve qualified for the study and completed the survey, you can claim your compensation under the reward section of your PicnicHealth account. You will receive an e-Gift Card or e-Visa card…
- 3 mths ago
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How do I know if I am up to date with surveys?
You can check if you have any available surveys by logging in to your PicnicHealth account and reviewing your to-do list. There you can find any available survey for you to complete.…
- 3 mths ago
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What is the purpose of these surveys?
The purpose of these surveys is to gather information directly from patients about their experiences with a medical condition or treatment. By collecting this information,…
- 3 mths ago
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Interested in donating your anonymized records to research? Learn more!

Hi, how can we help?

Research

What is the purpose of PicnicHealth studies?

Can medical records really help with research?

Who can join a study?

How does study eligibility work?

How does study compensation work?

After I have volunteered to contribute my info to research, can I stop participating in a study?

Does PicnicHealth run clinical trials?

If I participate in a study, will I see its results?

Who is sponsoring the study? Are there any third parties involved?

What happens to my survey data if I cancel my account?

What will these surveys ask?

Why should I complete these surveys?

How are my responses being shared?

How does survey compensation work?

How do I know if I am up to date with surveys?

What is the purpose of these surveys?

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