The purpose of these surveys is to gather information directly from patients about their experiences with a medical condition or treatment. By collecting this information, healthcare providers and researchers can gain a better understanding of how patients are impacted by different conditions and treatments, and can use this knowledge to improve patient care and outcomes.

Surveys ask questions about your health conditions and how they impact your day-to-day life. You may be asked about your symptoms, physical and mental well-being, medical history, social factors, healthcare experiences, and more.

Surveys capture your lived experience with a rare condition and amplify patient voices. The patient-centered data from surveys can help advance research by giving researchers insight into the real world experience of people living with a medical condition. As a bonus, some surveys offer compensation to participants.

PicnicHealth's research team will have access to your survey data and may also share de-identified data with other researchers. It's important to note that any shared information will not include personally identifiable details, ensuring your anonymity.